Dr. Donald Miller, an esteemed cardiac surgeon, recently reviewed, a book by Dr. Harvey Bialy, entitled, "Oncogenes, Aneuploidy and AIDS – A Scientific Life & Times of Peter H. Duesberg." Dr. Miller noted that a small cadre of scientists have questioned the official government position on AIDS, as well as the toxicity of some of the treatments regularly prescribed to patients. In this interview, I speak with Noreen Martin, a 50-year old, white, housewife from South Carolina, who was recently diagnosed with AIDS, but has since developed second thoughts about both the diagnosis, the treatment and medical paradigm
1. When were you first diagnosed HIV+?
In late 2003, when I just turned 50.
2. What did you know about AIDS at that time?
Oh boy, I was pretty ignorant. I believed, like most people, that HIV was transmitted by sex which causes AIDS and leads to death.
3. How did you react to the diagnosis?
Truthfully, I was relieved. I know this might sound strange. However, I had been extremely sick for months, had seen numerous doctors and continued to go downhill and no one knew why. They ran me through a gambit of tests to include numerous blood, arterial blood gas, CT, MRI, spinal tap, IV in my foot and 2 each excruciating, bone biopsies.
4. Were you surprised by the diagnosis?
Yes, quite surprised!
5. How was your health at the time of the diagnosis?
Wow, looking back, it’s a miracle that I am alive. As you see, I had the following: nausea, diarrhea, weight loss, hair loss, loss of short-term memory, thrush, low platelets and other blood anomalies, Epstein-Barr Virus, encephalitis, anemia, gerd, tachycardia, enlarged bile duct, abnormal liver enzymes, mood disorder, wheezing, heavy, labored breathing and more. At some point they said that I had been exposed to hepatitis C.
6. After being told you were HIV+, were you advised to take any AIDS drugs?
Yes, let me regress here. After being told that I was HIV positive, I was then placed on hold for 2 months before I was seen by the infectious, disease doctors. In the mean time, I could not just lie around and die, so I went to my favorite health store. The owner, a very special person, told me to go see a local, alternative doctor, which I did. This doctor placed me on a few supplements and administered 8 each, chelation treatments. These treatments helped me considerably because on the chelation days, I could at least get up off the couch.
When I finally made it to the infectious, disease doctors, they were not familiar with the previous chelation treatments and stated that I must stop these treatments if I wanted them to treat me. So I did. They called in the pharmacist and she instilled into me the importance of not missing any doses of medicines. They placed me on Viread, Sustiva, Lamivudine and the antibiotic Dapsone which I was on for over 1 year.
7. How long did you take the drugs?
I took the above regiment for approximately 15 months. I stopped these drugs for 6 weeks, only known to my husband. However, with tremendous pressure from my 3 doctors and husband, I reluctantly went on a second set of anti-virals. I wanted to come off the drugs, of course, my doctors did not agree with me. My young, resident doctor would generally go and get reinforcements, meaning the head doctor and pharmacist, to try to change my way of thinking. The only difference that I noticed after stopping the drugs is that my chronic fatigue started coming back. Could it have been some sort of drug withdrawal? This time I was placed on Lamivudine and a new drug which turned me very yellow and elevated my liver enzymes.
Forgive me if I may have forgotten a drug. I was taken off these and switched to Viread and Ritonavir which I was on for approximately 8 months. Oh, I almost forgot, one, little, pink pill which I don’’t recall its name. The second and last time, after having the last piece of the puzzle explained to me by Kary Mullis, In my heart, I knew that what I was about to do was the right thing to do. You see, I made up my mind, if I had to go it alone, so be it. I found that the human body has an innate ability to survive and the mind is a wonderful tool to block out bad memories. Most of my sicknesses, pills, tests, etc. are now a fast, moving blur, away from me. Whether these pills are addictive or not, I’ll let the chemist decide. However, they really are mentally addictive, especially since one is led to believe that one’s very existence depends on these pills. I found it somewhat difficult to break away from these “jelly beans” even though my mind told me to do so. This time, I did so well off of the medications, that my husband changed his mind about the situation. As you see, he is from Missouri and I had to show him!
8. You mentioned Dr. Kary Mullis, the famous Nobel Prize winner. What was he like?
I only communicated briefly with him via the email. Nevertheless, judging from his communication, he is extremely intelligent but able to speak on my level. His has a good sense of humor and speaks openly and honestly. He seems to be a very caring person and I will share with you one piece of advice that he gave me, "Trust in Allah, but tie up your camel."
9. Ok, so what were the side-effects of the AIDS drugs?
Different drugs had different side effects. For example, most gave me diarrhea and I had accidents in and outside of the house. With Sustiva, I could not eat much food, especially fatty foods. Once I made this mistake and it felt like I was extremely drugged. As stated earlier, one drug turned my skin greenish-yellow to include the whites of my eyes and inside my mouth. I wasn’’t outright told the side effects of these drugs. For example, my teeth were becoming yellow so I went to the dentist and paid $500 for teeth, whitening procedure. The dentist tried twice but it would not work. It was no fault of the dental procedure. After research, I discovered that every one of the first set of HAART and Dapsone were known to discolor the teeth. I was never told the effects of any of these drugs. Only when I questioned my primary, infectious, disease doctor about a specific side effect, would he reluctantly admit to it.
10. At any point, did you develop full-blown AIDS?
Yes, I had full blown AIDS several months prior to my HIV diagnosis. When the diagnosis was made in December of ‘03, the oncology department apparently missed the fact that I had full- blown AIDS. I had in fact several of the AIDS, defining diseases and my CD4 count were at 78. I attribute my bad health to a number of factors to include, past medical history/treatments, legal drugs, stress, health habits and specifically to the non-treatment of anemia, low platelets, abnormal blood problems and memory problems. Prior to developing AIDS and unbeknown to me, I had consecutive years of abnormal, blood results.
11. What did the doctors tell you about AIDS?
Not very much at the initial visit. However, later on when I became more educated and questioned them, I was told the standard responses –– HIV cause AIDS, take the anti-virals or you will get sick, you almost died……you’re CD4’’s are low. Nothing impressive, basically just the party line that you hear on t.v. or read in the papers.
12. What prognosis did they give you?
In fairness to the doctors, I was somewhat out of it at that time. I can only recall them saying that they could probably save my life. However, they told my husband that they could extend my life 10 to 12 years. On doing a good job, well, I am still alive. However, where I feel that they are lacking is in the diet, supplements and basic health habits of the patient department. I was never questioned about any of these things. If I had not taken upon myself to get educated in a hurry and start to change bad habits and incorporate new, better ones, I personally feel that I wouldn’t have recovered so fast, if at all.
13. Did any AIDS doctors discuss with you some of the competing theories of Drs. Duesberg and Bialy?
Ha, ha, ha, very funny, surely you jest! Of course not!
14. How did you family handle all this? Your husband? How is his health?
Shocked, relieved that I was getting better. My husband handled the situation quite well under the circumstances. He was a real trooper. He worked hard during the day managing his business while worrying about me. He took time off and was always there for all my doctor visits. He was my knight in shining armor, my prince. On chelation, therapy days, he would drive me to the clinic and lovingly place my house slippers on my feet so that I would be more comfortable in the recliners for the treatments which took 2 to 3 hours. We did, however, have some heated discussions about my coming off the drugs. I can understand his point of view, because he saw me sick and dying and the drugs may have helped, along with my supplements, herbs and vitamins. Nevertheless, in a very short period of time, 3 months, I was doing quite well and did not want to remain on these medications long term. My husband’s health is excellent. He is HIV negative.
15. What type of research did you do to learn about AIDS? Books? Papers? Internet?
I read every website that I could find about AIDS, pro and con. I ordered books and gave a copy of Christine Maggiore’s, wonderful book to my physicians. I emailed and spoke on the phone to various authors, reporters, attorney, scientist, HIV persons, AIDS persons, doctors, rethinkers and more.
16. How is your health today? What is your prognosis?
Today, my health is excellent. I attribute this to better, health habits, coming off the anti-virals, a positive attitude and a wonderful drug, LDN, low dose naltrenoxne. LDN was pioneered by Dr. Bihari from New York City for the treatment of immune, deficient diseases, including AIDS. I take one 4.5mg pill each night which wards off opportunist diseases by increasing the body’’s natural endorphin levels.. I feel that my prognosis is excellent now. However, when I see the infectious, disease doctors next month, they will surely tell me that my viral load is greater than 100,000 and that I need to go back on the anti-virals, the same old song and dance. I will just smile and say, no thank you I think that I’’ll sit this one out! This past week I had a routine, complete, blood count and this is the first time that my levels were pretty normal, including my liver enzymes. So, you decide!
17. What have you learned about AIDS that you didn't know before your diagnosis?
Wow, plenty! I learned a lot about politics, medicine, and my inner strength. I started a website devoted to health issues, noreenshealthdiner.com. so to help others
18. Any advice for HIV/AIDS patients?
Yes. About the anti-virals, to take or not to take them is a personal decision. Initially, they did help me. However, I did have side effects and my blood and liver levels stayed abnormal. What bothered me most was the damage that might not be so obvious. I think that these medications as with any medicines should only be used when absolutely necessary, to be used as a crutch to help with the healing process. My belief is that one cannot be medicated or vaccinated into health. These are only a small piece of the pie. I want others to know that there are those out there who will support them. One may be pulled and tugged like the tide. Nevertheless, do your homework, listen to and weigh all sides of issue. In the end, do what that inner voice says is the right thing to do, after all, it’s your life.
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